Hello, I’ve never posted before and only just signed up to this site but thought I would share what my mum is going through. 3 years ago 2017 she was diagnosed with HER2 breast cancer, she had chemo and radiotherapy and we thought that was it and life could go back to normal. The following year we found out that unfortunately the cancer was back but had spread to her lungs and later in the year we found out it had spread to her liver. She was having treatment for this and was offered a trial which she was happy to do, so she went for the scans and bloods ready to start but unfortunately the MRI scan detected she had 3 pea sized tumours in her brain. Chemo wasn’t an option for these so she had radiotherapy on her brain and were under the impression that would clear it away. It didn’t. One evening around 3 months ago she showed stroke like symptoms, couldn’t remember our names, was very confused and not making sense. She went to hospital and they though it could of been a mini stroke but Christie’s scanned my mum on a later date and told us the tumours had grown significantly and there was nothing more that could be done and have her months to live. She was put on steroids for a few weeks and our lives fell apart at that moment. Last month she had another funny turn her temp was 39.9 and she wasn’t making sense again so ambulance took her to Christie’s and put her back on steroids. Highter dose for 1 week then lower dose for life but over the last week she’s had them increased twice from 2mg to 4mg and today to 6mg. She’s spending more time in bed, not always sleeping but resting a lot. We’re all anxious and on edge just wanting to spend all the time in the world with her without doing her head in. It’s just heartbreaking seeing her deteriorate infront of our eyes and not being able to do anything. I’m currently in the process of getting video messages off her friends and family to try and lift her spirits as with the virus at the minute she’s unable to see anyone. Just wanted to tell you my story really. Hope your all keeping well x
Hi Killackey85 ,
I'm new to this site just like you. I'm so sorry to read about your mum and my heart goes out to you. I think it's a nice idea getting video messages off family and friends so your mum can see.
I too have been diagnosed with this HERS 2 , presently undergoing chemo and Herceptin followed by radiotherapy . I hate the treatment and after reading about your mum I'm begining to think what's the point . They don't tell you any of this before treatment and I'm terrified of what I may have to face .
Did your mum complete all her treatment ? Can't the hospital give her further chemo to reduce the cancer or do they actually give up on you ?
I'm sure your mum draws comfort knowing she has a loving caring daughter , other family members, and good friends supporting her.
Your story touched my heart and I sincerely hope the Drs can help your mum. Stay strong sending lots of love and hugs to both of you xx
Hello I am so sorry to read your going through this. You have to stay positive your journey will be totally different to my mums, I think my mum is just very very unlucky . I hope you have a good strong support network around you too. My mum loved the videos thank you, she cried. She’s not even cried yet she’s been so strong but she did on Monday when she watched the videos. My mum was offered chemo at her last appointment at Christie’s on the day she was told she had months left but they advised us that it was more risky for her to come to the hospital every day because of covid and that it wasn’t guaranteed to work plus the cancer was to far gone. She chose not to have it . The doctor sees her regularly now at home as well as the district nurse. She’s doing well tho. I do hope your treatment goes well and you keep your spirits up sending you lots of love xxx
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