Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
Jane is a haematology nurse with extensive experience in stem cell and bone marrow...
Hi all. Am 10 months post transplant. After months of no skin gvhd ( had it in first 6 months) it's reared its ugly head again. But it's different this time.... a mixture of a blotchy rash and a pin prick rash... like dots. It feels tight, and tingly.... really odd feeling....
What sort of rashes did you get, and anyone have pain, stinging/tingling or tight skin feeling? Thanks
my advice? Phone your specialist nurse, it might be you need to be seen and started on something to help.
hope you get help soon
Hi Jalola, sorry to hear the skin GvHD has come back.
Just checked my note book and my skin GvHD was between days 85 -157........ sounds the same as you are having (but no pain) but it was very itchy.
I was given a few types of steroid creams for my body and my face, along with Hydromol moisturiser and Dermol 200 shower cream to use regularly and this all kept it under control until it disappeared.
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
Mine went away (acute) and then came back after 9 months or so (chronic). It was different the second time. Blotchy skin all over and, new to me was terrible sore mouth. It is just now starting to fade, but of course, no guarantees.
My early GvHD was also like pin points of red, merging to more dense blotches. But it was never itchy. After DLIs it came back in the creases in my elbows, which I'm told is a favorite spot.
The last few months (and I am nearly two years post allo) I have started getting itchy patches without redness (until I scratch it) in my elbows again. It goes with some Diprobase. I also had a more severe rash under my armpit which I was told to treat with hydrocortisone. To me both these look like eczema rather than the GvHD I had earlier. I will raise at next outpatients.
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