Hi there,
I’m currently day 97 post allo SCT for T cell Lymphoma. Its. Have started with a faint red pinprick style rash on back. Not painful or itchy. Anyone with experience of early GvHD - how did it present? I’m now off Ciclosporin so hoping it’s the donor cells activating rather than return of my disease. Will see my team next week and inform them.
Many thanks.
Great news Sumo……
At day + 98 my first Chimerism was 39% Donor…… it took until day + 644 for my Whole Blood Lymphoid and Myeloid Lineages to be 100% Donor.
My SCT Consultant told me that going through the SCT process (diagnosis, treatment and recovery) is like doing a marathon and a boxing match every day over all the months to this point in time….. and this was all done without any training.
Think about doing the London Marathon and boxing Mike Tyson everyday, without any training and you had to finish it as your life depended on it……. this is the journey you have been on so it most likely will take much longer than you would think to get back to some normality.
Not giving yourself enough time could be a significant backward step.
Some folks are lucky and bounce back quickly post treatment but more than often folks take a considerable amount of time to recover.….. at 3-4 months post my second SCT I was just out of my wheelchair and able to do a few steps with my walking sticks….. and I had significant aches and pains over the first few years.
