I’m back having found this group useful before we are now ready for my mums Auto SCT on 17th Dec. Harvest just been completed. She’s obviously scared at 70 years of age! My job is to keep her motivation going right now so she’s asked me to help start getting her case packed. Please let me know what the absolute must haves are and any items which might make the stay more pleasant. We know she will have her own fridge so any go to ideas to stock in there?
on a less practical side I have a more medical question please. They have said she has 2 ‘markers’ which have some risks, but I have been only able to establish that 1 relates to the bone marrow and 1 is to do with chromosome? Any ideas on this, however I appreciate it may be a broad question?
thanks for any input
You can see this information in the link I gave you but the two weeks leading up to the M and all the way through until I got out of the unit I was using a two pack oral mouth rinse called Caphosol.
So I set my phone for every 3 hours to make sure that I was doing this all day. My head consultant said that the Caphosol was rather expensive but if I used it correctly it would save me a lot of mouth pain and having to be on other drugs to over come any bad mucositis. I did well with only one very small area developing and it was not a problem.
Melphalan also strips your gut of healthy bacteria so bad diarrhoea is inevitable and lengthy. It also takes your gut a long time to recover so don’t expect it to go for a while.
Once mucostis gets past a certain point the Caphosol will not be so effective so more specific anti-fungal/painkiller treatments need to be used to get the condition under control.
So what ever they give her to use, use it EVERY day as it does help.
Not all units supply it so do ask. I had it during both my SCTs and had no problems with mucostis….. A few folks who have come through the community did manage to purchase it and take it in and did not regret it ((hugs))
