Hello everyone,
I had a stem cell transplant on April 1st 2021, I was given a lot of advice and reassurance from this group. The transplant while not a walk in the park wasn't nearly as bad as I had imagined it would be. I had super care and even though treated during Covid I had no worries. I was discharged after 12 days and I have continued to do well. I am walking between 3 - 5 miles a day with my lovely dog, I can't wait to be able to start swimming again in August.
Now it's over I wonder why I was so worried and I want to say thank you for your advice and support. To reassure others that while it's scary before you start the process but although the treatment has its unpleasant moments it's all copable with and your imagination will be worse than the reality. I'm in remission and long may it last.
Good luck to all those still having treatment my thoughts and prayers are with you xxx
If you want to chat or ask any questions feel free to get in touch xxx
It all went well thanks. I have zero energy and feel awful but can’t complain, the fog seems to be lifting slightly each day. The docs say it’s all normal and are happy with where I’m at. I’m in MRI Manchester.
Sorry to hear you have an infection, I wish you a speedy recovery xx
Every day is a day nearer feeling 100%, fingers crossed you will feel better soon xxx
Thank you.where did you have your sct? I am going to Addenbrookes. Xxx
I had mine at Blackpool, I live in Barrow which is in Cumbria. I'm doing really well some of the strange things that have happened since sct are I used to be a coffee only drinker, now I can only drink tea, can't tolerate anything fizzy, also my skin reacts differently to the sun. I would say for me the hardest thing, is to remember that while my head things I feel great I can do anything. My body will tolerate it for so long then exhaustion sets in and I have to rest. It's finding the balance which I'm working on. The problem with sct is that we all experience it slightly differently the side effects of being nuked prior to transplant also vary. My advice to you would be don't wait for the nausea or trots to get a hold as soon as they start tell the nurses and they will give you medication to sort it. Also try and remember these side effects won't last for ever a matter of days a couple of weeks at the worse. Be kind to yourself......your future is waiting for you xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007