AML relapse BMT advice please!!

Yes these calls (had a few) are all encompassing and challenging but unfortunately this is the time you have to take a few big breaths and as we say up in the Highlands “take you’re head off and give it a good shake” and get prepared ((hugs))

Thank you x I’m trying my best but I’m so scared ! ️

The fear of the unknown is challenging - knowing gives you a foundation to plan towards and deal with it ((hugs))

Hi Jess,

I wanted to reply, firstly with a big virtual hug. It is scary and as Mike will know I am struggling with it all at the moment and questioning everything.  So yes I and many others fully understand how you are feeling.

Last year I was in a similar situation but for a different type of blood cancer.  I had relapsed with the first line treatment and was told I would need a SCT. The consultant went through lots of 'ifs and buts' including getting back into remission.  He described the various stages as hurdles in a race that I needed to 'get over' - not very helpful at the time!  As others have said I think that they need to lay it all out clearly as they have responsibilities.

My advice is to take each day at a time and just focus on the 'next step' - whether that is a simple blood test or a chemo session and to let the doctors do what they need to do.  If I tried to look too far ahead it all got out of hand.

You will get to the transplant soon enough.

Up to that point (and beyond) the people on here are a great support.

All the best,

Mike

hello Jesica, I am so sorry to here about the chemo not getting you into remission. I had AML and three months of chemo, three different types of chemo and then a SCT. I had two mutations and some are resistant to chemo but do respond to SCT.  I have been in remission for 7 years now. Please speak to your heamotologist about your fears and I am sure he/she will help put your mind to rest. Although saying that they do have to give both sides of the story and that is the most scary thing.

Yes you are right I have just had a call from my consultant to say they can get me into remission with just chemotherapy tablets alone prior to my bone marrow transplant which is great news means I don’t need an extra hospital stay! 

Hi! Thank you it really is so so scary! Thank you so much for your support and advice 

Wow you’ve done amazingly! She does to a certain extent but I guess she can’t guarantee anything and she has to give me the worse case scenarios which isn’t nice ️

Hi again  this is indeed good news and a very encouraging call.

For me (having been there) this would have been seen as a good positive step across the steppingstones that are going to get you to the other side.

You take every step as it comes but at the same time your focus is also needs to be on the greater good in all this ((hugs))