So, my lovely wife is headed for a SCT hopefully in about a month. She has AML with FLT3 mutation and has leukemia cutis. The cutis reared its ugly head just as she was about to begin her consolidation treatments. So that got cancelled altogether and they started her on Xospata to target the FLT3 in her skin. So far the cutis has almost completely faded and we are now talking with the transplant team.
We have been blessed with her brother being a match! No waiting for a donor search! YAY!
Now, we just have to pray the transplant takes. I know there can be lots of complications and I am nervous that she will be home with no immune system in the middle of a pandemic. I dread going back to work and risking bringing something home with me. Overall though, I think we have been lucky considering what she is dealing with. I can’t wait to get her better and to be able to offer support and hope to others facing this dreadful disease.
