Our son is having his stem cell transplant on 14th February. Our daughter is the donor. We are glad that his MRD levels are now low enough.
He is looking and feeling so well. All bloods stable after a month on a relatively new drug Blinutab (spelling maybe off there) to get the levels down. It's going to be a shock to our system seeing him go backwards again.
Yes, Katy went to a different hospital for her radiation treatment, twice a day, she Went in a taxi with a nurse- it was to the same hospital that my other daughter who was the donor as well- and Li ended up staying in as they couldn’t find a vein so she had to have a line in her groin- typically Lisa- nothing is ever straight forward with her
but on Katy’s last day of radiation they allowed Lisa to go and find her and it was an emotional moment as Katy got her first lot of cells while Lisa was donating her second lot!
I would say day +2 Katy started with the musositis etc- so tell your son to use the mouth wash religiously- then until the cells engraftment around day +10 was the worst but everyone is different.
you will feel exhausted but you will keep going as that’s what we do but it is hard. But Nicholas will get through it and this time next year he’ll be wondering what all the fuss was about x
KT’s mum
Aw you have brought tears to my eyes. I can imagine it was emotional for them both. That's bit I know I will struggle with seeing chloe attached to machine . As you know the both are involved in this procedure.
She is starting the gcsf injections tomorrow morning. Bit worried as she still has a cold from.last week!. Yes someone said about the musositus can be tough.
I assume chloe will donate twice if not enough collected. She is doing her bit 13th Feb
Hayley
Hi Hayley,
it’s not well known here in the UK but widely used in the USA; they say before G-CSF starts, get her to take a daily Claritin (brand name Loratidine) as it really does seem to help prevent too much bone pain which can occur as the bone marrow works hard.
hugs xxx
Moomy
Good morning Hayley. we stay in Inverness but my mum and brother stay just north of Aberdeen so we went over fir a few days.
I have said that my brother was my donor....... what I did not tell you was at the very start we had no idea how this all worked and thought it would not take a lot of stem cells to do this so I promised him £1 for every cell he gave....!!!!!
He was just home from the weekend from his very large boat he now has in the South of France
I will be eternally great full that he saved my life twice.
Mike
That is so funny about £1 per cell.
Yes chloe is already blackmailing nicholas. Domino every Saturday.
Here now for her gcsf injections..I didn't realise they would be 3 a day!!
This time next week she will have donated and nicholas will have received.
Just want it over for both my children
Thank you for the support
Hahaha, I knew you meant tomorrow, Hayley!
yes I totally get it, you truly DO want it done and dusted; sadly it will take a while.
But your two will get there I’m sure. Patience is VERY hard to use when it’s your children but you need to be there for them both of course!
Hugs xxx
Moomy
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007