To recap, I was doing fine at 2 years plus post-transplant. At my recent outpatients, they didn't like my blood counts, so I was called in for a bone marrow biopsy. The full results aren't back (they don't have the genetic profile yet, if that is the right term) but there are leukaemia cells there. The plan is that I go back in for 4-6 weeks and have some 'mild' chemo and some lymphocytes. They will see how I do on that, though they have to check first if I am fit enough, so ECG on Friday. Alternative is twice weekly visits to outpatients for maintenance treatment - I really don't fancy that at all. I felt consultant was cautiously optimistic that I wouldn't have to do the whole SCT cycle again.
Lots of packing to do.
Tessa
Good news Tessa, great that you feel a lot better.
Oh Tessa, tea that has been in the pot for an hour..........your own supplies is the way to go. When I was able t gave coffee we had our own coffee and AiroPress with us as well.......
((hugs))
Hi Tessa,
For my second Allo I had to have 3 weeks/30 zaps of Radiotherapy to clean my skin up before I was admitted on day -7 but you don't have skin Lymphoma.
My 7 day conditioning was FluMelAlem30 Fludarabine, Melphalan and Alemtuzumab - see my protocol below.
All went well until the night of my first batch of cells as I developed A-FIB so was taken to ICU. I got back to the unit a few days later and got the second batch of cells and exactly the same thing happened so back to ICU for a few days.
I got out after a total of 28 days in the unit.
((hugs))
I don't think I answered your question as you may be looking for treatments to get ready for going into Allo.
My first Allo (June 2014) had failed by December 2014 - Day 92.
That did a BMB and based on these results I was told to go away and have some R&R.
My second Allo was October 2016 - 10 months later!!!!
During these 10 months I did not have any chemo treatments but was having regular skin treatments (PUVA) to keep my skin as clean as possible..... another BMB in June just to check - but all was well.
The 3 week/30 sessions of radiotherapy was an integral part of my conditioning.
During my first Allo, part of my conditioning was 2 weeks/10 sessions of Total Lymphoid (Radiotherapy) Irradiation.
TLI is used to weaken the immune system to enable donor’s cells to grow. I did not have much side-effects but had an increased risk of viral infections within two years following the radiation. My team also said that the initial TLI in June 2014 was still working in October 2015 for my second Allo.
So this most likely is rather different from what you will be doing.
