Hi all, I'm buckling up for the ride
See my personal info for the train crash of my journey so far...sorry for length
Yesterday had first chemo at Addenbrookes day unit about an hourish away. Given the GCSF that needs mixing together. Gave myself 2 jabs rather than leaving needle in for second syringeful...followed by a clexane chaser!
I hesitate to say this was the simplest bit...
Will return there for Auto stem cell harvest planned for next Tuesday and Wednesday (9/10th). Will stay in caravan nearby as hospital accomodation doesn't take dogs, obviously!
Transfer will be at my local hospital in Ipswich
Greatly encouraged by all your stories....in my moments of despondence and anger I know you're all there with your experiences and encouragement...if you can do it I'm going to give it a damn good try!
My husband is always there for me and takes one day at a time....he never reads up or anticipates anything, no questions or negative expectations. However I'm the questioner, reader, planner, preparing financialspreadsheets...info, dates etc for when I expire (sounds better than die or snuff it or shuffle off to rose cottage, lol). I'm learning to stay in the moment and breathe.....trying not to jump forward to all the things that can go wrong but taking notes of advice....avoiding mouth ulcers is a Biggie.
Veins not good after 2 courses of chemo. Pick line never worked well. In for central line this week...hope we can go for subclavian rather than neck. How does showering work?
CAR-T has been mentioned as being a possibility so there's hope if this doesn't work....last resort....let's get this over first with lots of crossed fingers as I'm really not that optimistic regarding long term.
Kudos to all with long term health conditions especially with pain issues.
I'm not sure I've got the strength to 'live long and prosper' Spock
Regards, Lynda xxx
