Im scared about husbands hospital discharge

Wow! Kiss?! I was impressed with myself for surviving an Eagles concert 10 months after sct. Good job! I hope Gary just gets better and better.

Hi Shopkin

My husband has AITL lymphoma and had been in hospital for a couple of weeks and desperately wanted to come home. He would make out he was eating and drinking and could do more than he could I was shocked and very upset when the surgeons said he was medically fit and could come home.He has to sleep downstairs and the occupational therapist said I needed to buy a bed quickly -my husband told her we had a suitable bed which is not the case. Thank god the nurses said no! He was unable to do much for himself cant walk more than 5 yards still. They offered him a care package and he said we didnt need it. He was only thinking of himself and expecting me to take up the slack. I was SO worried and upset and did not understand how they could send him home in that condition fortunately it takes quite a while to sort out a care package so he was slightly fitter when he came home he has been home a week and it was exhausting for me it has been a full time job and quite frankly the care is useless as they arrive at 11.00 am when ive done most of it. You really do have to get tough and stand up for yourself because its not good in the end for your husband. My husband has been home a week but has been constantly back to hospital for bood transfusions and chemo and is currently in hospital for an infection so i have had a bit of respite. Get as much support if possible from the medical team and have a very frank chat with your husband because he has to appreciate the affect it has on you. Fortunately the nurses on the ward where my husband was were as shocked as I was and the sister made sure everything is in place for his return home. my husband when he returned home also expected the same sort of care that the nurses had been giving him ie bed baths etc so the enablement team have been encouraging to do his own washing. I leave some jobs for them to do so there is something for them at 11.00 am. i suppose telling all of this story is too say that even though your Husband is very sick and probably very fed up he has to be realistic and its really hard for them but he is learning not to FIB about how he is and to ADMITT to his needs because it is not what he is used to-men do not like admitting to these things as they see them as weaknesses so you are right to be concerned and right to stand up for your mental and physical health also. A very difficult time and I wish you all the best I hope my comments herlp in some way. 

Thank you.   X