Failed SCT for AML.

FormerMember over 5 years ago

3 replies
10 subscribers
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Almost 16 months post transplant but cancer has returned. Just had 3 cycles of Azcitadine & going for bone marrow testing to see if I am in remission & can gave DLI to buy more time. Anyone with advice or in this position as I am devestated by these events & worried about what is to come.

Thehighlander over 5 years ago

Hi again , lets see if anyone can give you any help.

Mike (Thehighlander)

It always seems impossible until its done - Nelson Mandela

My cancer story

johnr over 5 years ago

Hi have you had any discussions about trial drugs or CAR-T cell treatment? here are a couple of links to American info re trial drugs which can be use depending on the profile of your disease and second about CAR-T treatment for AML

https://www.cancer.org/cancer/acute-myeloid-leukemia/treating/targeted-therapy.html

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6406805/

We do have some users who either have had CAR-T cell therapy or are about to for Lymphoma and in this thread is mention of someone in the states having this for AML https://community.macmillan.org.uk/cancer_experiences/stem_cell_transplants_for_blood_cancers/f/d6a101d9-6dcb-4437-ad00-0445bd965da4/183074/car-t?Page=1#1354954

so if you post a question there Alzjunkyard may see it and reply or may be able to find out more from their friend

hope this helps but doe start the discussions re options and why they recommend one over the other.

John

we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are

FormerMember over 5 years ago in reply to Thehighlander

Thanks. Will try the link & speak to hospital

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