Transformed follicular lymphoma

FormerMember
FormerMember
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Hello, I guess I'm the baby on the block, as today I found out that my last chemo didn't co-operate with my body. I was pointed here initially by Johnr, who told me that Mike (The Highlander) is here as well. So its great to kno one familiar person Smiley

Well it went pretty much how I thought with just one difference, my follicular lymphoma has transformed, so next week I am going into hospital for 1 night, while they start this off, they will repeat this for a further 2 times then I have a 2 week break before it all starts again for a further 2 cycles, at the end of these 3 cycles they will them be getting me into hospital for a month, this is to remove a decent amount of my bone marrow, before killing everything thats left behind, then putting back my marrow and hopefully maybe it'll kill it off.

The drugs they will be using are gemcitabine, cisplatin and methylprednisolone,referred to as GEM-P  the antibody will be Rituximab.

They've also given me a load of tablets to get started on including an antibiotic, in case the redness of my groin lymph nodes is infected.

Some year this is turning into :/

But I do feel okay otherwise.

  • FormerMember
    FormerMember in reply to FormerMember

    Ok, bloods and doctors dealt with.

    I have been on steroids for the best part of a year now and I am starting to suffer muscle wastage, mostly in my legs but  a bit in the arms. One of the side effects they feel is I am now suffering anaemia because of the steroids, so Friday 19th they want to do a transfusion before my chemo.

    Apart from that they feel that this Fridays infusion which is a short one my bloods are fine for.

    Then the week after its time for my CT scan and they will then be talking to the SCT people at Sutton about what happens next.