I thought it might be an idea to start a new thread for the late effects and any problems folk get post auto and allo, particularly those which appear a year or so down the line.
After an allo then infections are common, particularly within the first year, the average for readmissions for this is three.
But after that some folk continue to get problems. Daughter has had immunoglobulin on and off to try to prevent infection. She went a complete year without and had an awful lot of problems, lots of antibiotics; they measured her immune levels at less than 1. Average ‘low’ is 6. So this last winter they tried hard to build it up, having I/G’s around 2-3 week intervals. She had her allo in September 2011.
today she has suddenly begun a nasty, painful, productive cough and raised temp. Fortunately she has an excellent GP who sees her fast and is interested in her history. Hope it gets sorted!
hugs xxx
So in the middle of having all my bloods ready for my Late Stem Cell Transplant Effects Appointment (Video Conference) 4 years 4 months and 18 days post my second Allo SCT.
Got a letter from GP informing me that I have Impaired Glucose Tolerance or in other words Pre-diabetes!!....... Follow up blood test and review in a year.
Causes:
Being overweight or obese - Very slightly overweight.
Not eating a health or unbalanced diet - Not this one.
Doing little physical activity - Not bad - but it is winter.
Having a family history of diabetes - No
High blood pressure - No
High cholesterol - No
You developed diabetes during pregnancy.................
The gift that keeps on giving.
Hi Jackie Jackie A2,
I see that you are in the same age range as me so and yes, I have been told that it could well be due to my 64 years.
Going to have a look at what we can cut to see if it can help.
Hi Mike
I got pulled on cholesterol a year back but consultant made me retest as I had eaten a steak sandwich not long before bloods done which can affect the result.. Better second time but apparently we don't sit in the normal range.. ours in lower due to increased risk of heart disease post transplant from the chemo! Perhaps it was just a one off reading that was high so I would request another..
I did have a stint as a type 1 diabetic when i was on steroids for GVHD but gave that gift back once the steroids stopped. Real nuisance trying to match the diet to the insulin as it was a pen with a fixed dose. Became worse when I was coming off the steroids and measured my blood before driving and finding I was too low and then having to eat a couple of chocolate chocolate biscuits!!
I had my first late effect clinic a couple of years ago. First year I got a DEXA bone density scan and this year I got an ECHO heart scan.. awaiting results but lady let me leave the hospital after so couldn't have been all bad!
Currently becoming an obsessive hand washer and making sure the immunoglobulins are in right on time to keep the immune system topped up..
As you say the gift that keeps on giving but I would have signed on the dotted line for the inconvenience of my current health and meds at the beginning of the treatment if it was offered as an option so I wont grumble about it.
Keep smiling
Paul
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Good to hear from you Paul and yes not complaining as I am still around doing well.
But as you say - keeping good hygiene is always part of the SCT life but I think we will all be talking extra care.
All my other counts are good so it’s all about keeping away from bugs and being lucky 
Hi Highlander, yes worth a look at diet first, we don't have bread or potatoes at all during the week other than fish and chips. Nothing to do with age 
J
