Late effects and problems

Hi all

i am also suffering from a chest infection. I will be 6 years post transplant on Friday. It has been hanging around now for 4 weeks. 

I have tried a course of penicillin I had at home and I have been loading up on immunoglobulins (yes still 6 years out!). Everyday I hope I will feel better but getting to the point that I may have try the GP!  May need a little bit of help  

Drives me mad as I just normally just Carry On!  Frustrating as while I feel bad it isn’t bad like I have known it to be! 

Just because you get years out. doesn’t mean you stop getting ill.  But hey.. perhaps I am just normal I’ll? Everyone gets a bad cold now and then right???

Hi Paul, it is frustrating when these things come along and is it is it not something to get concerned about.

We are over staying at my 90 year old mum’s in the very cold N/E of Scotland (wife’s mum died at the weekend so down longer than normal doing all the arrangements) and my mum insists on having her gas fire on ALL the time and I feel that my head is totally chocked up, I also have an emergency box of antibiotics but I keep holding back as once I get fresh air my head clears a lot.

Hi Paul,

yes I know, it’s an odd situation; how do you know if you’re not just ‘normal ill’? I think you just do know. 

And certainly daughter does ‘just know’ when she’s really unwell and running a temp. regularly. 

Hugs xxx

Today daughter said her CRP is coming down, bloods are better, she is feeling better and has one more antibiotic I/v booked for tomorrow, she had nebuliser again today as well as the antibiotic I/v. 

Phew! The relief is tangible.

hugs xxx

I used to get far more frequent colds and sore throats before AML/SCT than I do now. Maybe it's because I am on preventative drugs, but I'm more careful of keeping hands clean. I'll anti-bac them (gel or wipe) after touching hand rails, cash machines, petrol pumps - anything lots of other people have touched. And again before I eat. I also avoid being in the middle of crowds, but I have always had a bit of a phobia about that. Now I have a legitimate excuse instead of an irrational fear. 

Oddly I feel I may be harbouring a throat bug at the moment - but I've kept up the fluid intake, gargled with salt water, and so far it hasn't raised my temperature. I've been out today as I had plans I didn't want to cancel, but will take it easy the next couple of days.

Hope everyone feels better soon

Tessa

Oddly, since the Bombe machine moved to the other side of the Park (to TMNOC rather than the BPT) I’ve had loads less colds! Plus I decided with the breast cancer that I would add a multivitamin mineral capsule to my daily meds. So maybe it’s simply crowds? We were doing demos to crowds of 100 a lot of times a day.....(and folk think nothing of coughing and sneezing in your face these days, where have manners gone?) 

daughter has found her immunoglobulins have helped this last winter, it will be interesting to see what her levels are at present, and whether they drop a lot during the summer. 

Hugs xxx

PHEW! 

Thank you so much to daughter’s new team in Henley on Thames! They have really sorted her out and she’s back practising, which means her lungs and breathing are fine! Last treatment was this morning, and she has the cannula out now too. 

She felt so much better yesterday she baked them a cake! Bless. 

Hugs xxx

Big cheer for the team! So glad its all come good

I suspect if left it would rapidly have become pneumonia with her, so in just over a week it’s been sorted and she feels on top (almost!) of the world again, at least properly well. CRP has come well down too, her team are pleased at that. I remember one time we drove her north with a nasty flu type cold her CRP was over 150 and they refused to let her go anywhere, (that was indeed pneumonia)  but found a bed for her. This time it was almost 50 and climbing rapidly, so now that it’s well down but not in single figures yet, (19, but much better than almost 50) all seems well. 

Hugs xxx

I've had all the serious types of flu, 2 tried to see me off as I developed pneumonia at the same time. Now I don't need the flu jab (or rather didn't as I don't know) there's a question for next Tuesday.