SCT Success Stories

Any further news Beccdar?

Hi Bellabing , I went in for my SCT on the 24/08/2017 so I'm 12 months on, I have caught my very first cold since then, I did have shingles in Jan but I've been ok since , just been waiting for all side effects to subside but I'm good now apart from this cold, I don't feel ill just chesty and a runny nose . But I arrived last night in Greece so having some warm weather at last .Sue 

Hi Orson

sorry to hear you’re caught a cold, I hope the warm weather and rest helps you recover quicker ... have a wonderful holiday...

It does seem the 12 month mark is when a lot of people really seem to start to feel like themselves again. A year seems so long but in the big scheme of things it’s nothing i suppose

Shingles is no joke! I like how you are all "oh yeah, shingles..." That's how you know sct is a bfd.

Alissa, you are so spot on about Shingles and I have been so thankful to keep clear. A few of my SCT friends have had a very bad time with the Shingles but eventually have come out the other side and that is why my team insist I have a permanent stock of Acyclovir.......... as we say in the Highlands 'that's no a road y want ta gang doon'. Xx

My cold is doing ok the immune system seems to be working, I've shopped for two days now I'm off golfing now the Suns heat is cooling down then a cool swim after , hubby now has the cold I'm not selfish .

Hi

High risk ALL diagnosed Sept 12.. chemo etc etc.. Allogenic SCT May 2013..

5 years plus and all is well.. Work hard, play hard and enjoy life! 

Fab! Thanks for sharing. 

Hi all,

For me the Life After a SCT information provided by the hospital has been non existent and that I’ve found the only disappointing part. I met up with one of the fellas on my ward last week for a curry and a catch up and he felt the same. It’s only through speaking to each other that we worked out we were both aching and sore in similar places so it’s probably nothing to worry about. I found coming home after my SCT to be the hardest especially mentally as people just assume you’re back to normal again with little understanding of what you’ve just been through both mentally and physically. At least whilst in the hospital you can swap stories with people going through the same or just chat with a nurse or consultant but once home you’re not sure what you’re supposed to do when suffering or having the night sweats again, who you should phone or see for what and when but most importantly when should you just get yourself back in quick.

Regards

Mark

I was given a thick booklet from Bloodwise and a special leaflet  with lots of phone numbers but it was very much on the early acute stage. 15 months on I am still worrying what to do about sore throats and fluctuating temperatures.

I was in isolation in hospital so I so never met fellow patients. Tried to chat to some in outpatients but didn't get far.

Yes people seem to want you to hurry up and be normal again. No matter how often I explain things they only seem to hear what they want. A friend with lymphoma says the sick remind well people of their own mortality and they find that too scary to cope with. In many ways we are the stronger mentally for having faced it.

It's a shame the late recoverers leave the site as I think there must be much useful experience to be shared. 

Tessa