Hi there,
I was diagnosed with classical HL in October 2016. Had 2 cycles of ABVD and got a clear scan. Had 4 further cycles of AVD - clear scan. Less than a year later, 7cm 'mass' in my chest. Lit up like a Christmas tree, as did a lymph node in my neck. Had a large biopsy (around 3cm) of the mass in my chest and it came back negative for lymphoma (thank God right?!) but left us in limbo. Further scan, lymph node in neck still lit up so this week i'll have that biopsied followed by another PET scan next week. My dr says if I have relapsed, it with be GDP chemo for me plus SCT.
I guess I'm after success stories? There might already be a success story link if someone can point me in that direction? Has anyone had GDP? What was it like? I head your hair may not fall out.... is this true? Is there anyone out there a few years down the line and living the life of their dreams.
I've been handling this really well and taken advantage of this 'limbo' stage that we've been in for the last three months.... but now it is coming to an end with this new biopsy and scan... I'm getting really scared and starting to lose hope.
Any advice would be most welcome.
Thanks,
Shelley
Lol Shelley, yes the email notifications have been going AWAL over the past few months so always drop in and check until someone kicks the server down in the cellar.
.......... and I think you have 'got' the SCT success journey, I do not like rollercoasters as they do make me sick but you are sitting on the SCT ride, you can not find a seat belt and all you see is a dark tunnel and someone is standing with their hand over the 'start' button. When it's pushed the Majical Mystery Tour starts and be assured that as we have done the journey before we are around to give you all the support you need and before you know it you will come out of the tunnel and everything slows down.
((hugs))
Oh Yvonne well done you :) :) :)
Did you go up Arthers Seat???? if you did well done you and it's more than we have done. We had a week in Edinburgh living in our daughters house as they were away on holiday and did grown up things that you can't do with 3 granddaughters ;) but we looked at the Seat a number of times but....... 'well another time' We did do the Red open top bus for the first time and it was so good. Edinburgh is just so beautiful.
Believe it or not we have never been to the Tattoo......yes I know it's just not on, but we have never been able to get tickets as all these visitors take them lol....... but this is on our list as it would be great and as my Granddad was a piper in The Gorden Highlanders it is in my blood....... was it dry during the show?
Good to hear your doing ok even with the counts being low, I do think there is a point where you say 'what the heck, let's live'
((hugs))
This is great Yvonne.
Sorry Shelley for the diversion but see it as being part of the success stories - I do hope you got on ok this afternoon.
