Ideas for your checklist

Interesting thread, with lots of good info for my wife's allo (I finally discovered what that meant). No date yet set, just finished her intensive 10 day chemo at a local hospital and waiting for all sorts of things to start going wrong and for the staff to fix them. SCT is for March/April time.

Tom

Hi Tom, good that you found the thread helpful..... there is a lot to think about and put together........ as we were away from home for 4 weeks for Allo 1 and 7 weeks for Allo 2 it looked like we were going on a cruise........ if only.

SCT Teams are very experienced and well able to handle what ever comes along. Has her team said what Conditioning she will have to kill of her immune system before she gets her cells?

You may want to set up your own thread as this will keep all your support in one place - always around to help.

No we don't know what conditioning she will have yet. All we know is she will be in hospital for another 2 to 3 weeks to see how she gets on after the chemo course with lots of obs. Then a few weeks at home to recover before we will be off to Kings in London for the SCT. Do you know what happened to the poster Brighton.Hove (Gin), who posted on this thread in 2016? As she lives just up the south coast from us, she might be someone my wife might like to message and compare experiences with.

Tom

I will put up a tag for Gin but it's over 3 years since her last post on the site - this is not unusual as once treatment is finished folks do move on with life..... but some of us hang around to help out.

Thanks Mike

Bump for those on the SCT Rollercoaster 

Bump for those looking down the Stem Cell Transplant Tunnel. 

These are all amazing ideas, just wha I needed, thank you so much!!!

Hi  and welcome to our corner of the Community and I am pleased that you have found the info helpful. I see you have posted some questions to our Ask an Information and Support Adviser team and most likely they would refer you over to our little corner for help.

There are a number who have had their Stem Cell Transplant (SCT) in Bristol so let’s look for them to pick up on your post........ consultants tend to call SCT by its the old term often used as a Bone Marrow Transplant.

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Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

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Thank you Mike. It is so helpful to be able to log onto here to get advice that I can pass on to the family as appropriate. They are so busy in hospital right now and gathering this info for them from first hand experiences is so useful, gives me something to do to help and really helps the family plan the next steps.

Much appreciated. Take care everyone x