Question about radiotherapy on neck. Tumour.on tongue that has spread to my lymph node. I'll find put Friday when it all starts.

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Would appreciate top tips to prepare myself more for the side effects as opposed to the therapy itself. 

  • did it hurt having the nasal tube put in i sound a wimp but i’ve had enough pain to last me a lifetime right now xx

  • Only slight discomfort. Not pain. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • hi again just me i’ve had a call today from hospital on fri got to have a contrast ct scan do u have any idea on this x im feeling i’m not getting any information from my nurse or doctors 

  • Is this a chest CT? Or a radiotherapy planning scan? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • i think radio planning scan wat do they do 

  • Macmillan has info on this 

    Have a read and come back if you have any questions 

    www.macmillan.org.uk/.../masks-for-radiotherapy

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • And Leeds cancer hospital have a good video here ****youtu.be/zLF1o4BwbQs

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • All I know is that I’m having a dye put in hand to detect cancer cells for radiotherapy to be honest I feel like giving up I’m absolutley petrified of having the pain from radiotherapy I know they try and help and everything is different for each person but I’m so scared they said I don’t need a peg or tube as only having it one side I’ve had all my teeth removed last Thursday I don’t know how much more I can cope and deal with 

  • Have you phoned Chris Curtis at the swallows if your mouth is feeling better?

    Don’t give up. You’ll get a nasogastric tube if you can’t eat. They won’t abandon you. 
    Do you have support at home? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Yes my husband amazing I’m speaking a little today Chris emailed me a little but I struggle to understand long words and medical terms x my mouth feels a little better today but I’m having literally horrendous nightmares of radiotherapy on my throat and neck I’m scared of the pain as I’ve had so much the last few months x