Head Cancer

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In 1981 at the age of 3 I received 6 weeks Radiotherapy treatment for Rhabdomyosarcoma, a rare Cancer that grows between the eye and the nose. Which left me with a small skull, by time I was 5 all the bones in my head had fused.  Completely stopped growing of which my chin took the brunt of.  I'm also mostly deaf in my left ear and lost the sight in my left eye.  Even now at the age of 47 the size of my head makes me look odd. 

In the 80's cancer treatment was new and very experimental and I also required Chemotherapy,  my treatment lasted over 2 years, and finished when I was 5,  I struggled all the way through school with my fitness, spent a great deal of time coming last with the larger kids, and the asthmatics.  12 years later on from my treatment at the age of 15,  I went into heart failure and required a Transplant.  I'm now 31 years post transplant. 

Although I am up always smiling and up beet, the bane of my life is since March 2012 I have been suffering from same headache 24/7, for the last 13 years.  My whole head fells like it is constantly in a vice,  and my head, hands, and feet throb and are numb.  I also get episodes of nausea and pins and needles daily. 

Has anyone else who survived head cancer suffering the same?

  • Hi  and I see it’s your first post so welcome to the community.

    I have no experience with this as my cancer is completely different. To widen your search for support can I suggest you join our dedicated…..

       Head and neck cancer

    …….. support group where you will meet up with others on the same journey.

    Join the group and copy and paste the text from this post into a new post in the Head and Neck group.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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