What you wish you had known before starting Radiotherapy?

Best wishes to you both . Life isn’t all about down there . Your part of a beautiful team and work through the c …. 

hugs to you & Tracey 

Liz & OH xxx

Liz, there's a big rift between us, and I'm sure the E.D. is responsible for it.  It's so hard!!!  No it isn't, that's the problem!

I'm trying to make jokes about it.  We are still good friends so at least that's something!

Awe so sorry to be reading this Steve . My OH  really struggles a lot with the fact we weren’t really explained the full facts .  Infact we had that discussion the other evening when he was feeling down . 

I just said well would you change by NOT taking the medication as in his case it was that or nothing . 

maybe our ages make a difference . We also visit our local Maggie centre and speak to our dedicated councillor . He certainly feels better afterwards . She listens but also puts things into perspective. It’s getting near the dreaded blood test and find he struggles around that time. And with the added extra of another type of cancer it makes it a double whammy .

sending you a huge virtual hug as you’ve always been there for us .

liz & OH xx

Thanks for that Liz , I know what you mean about not being told the full facts.  A lot of it went straight over my head at the time.

I wouldn't change my decision about my treatment though.  My Oncologist said what he wanted to do, and he did it!

My PSA is behaving itself, just come down 0.05 to 0.26. It doesn't look much but it's going in the right direction.

I've been getting weekly counselling since February last year.  It really helps me.  I never thought I'd ever get counselling but I'd recommend it to anyone who is struggling!

Take care, both of you.

I was diagnosed with Prostate cancer Gleeson 8, December 2018. I had radiotherapy in 2019, 20 days at QE Birmingham. I found it better to travel by train, I had some very urgent needs for a pee when I travelled by car, there are more loos travelling by train.

I didn't have bits of plastic shoved up my bottom, they weren't available, at that time. But now I wish I had as some damage has been done down there, it's not too much of a problem, so be glad of those bits of plastic.

I am cancer free, my PSA has been virtually zero, just recently creeping up to 0.112! I'm alive, hoorray !

Great news!

0.112 is still a long way to go before any intervention.  I was told I have up to 2.0 before anything would need to be done. 

HI Steve, I reported PSA  of 0.112 as very positive and like you was told 7 years ago

that if it went up to 2 I was to return. I now have heart problems, I don't think prostate cancer is going to play any part in my demise !

Same for me, it's just the rest of my body falling apart!

Yes, reach 70 and you start falling to bits. I have spent this year travelling as much as I can, I might not be able to do so next year. I paint, watercolours and recently I have become an "urban sketcher", it has bought me a new lease of life, enabling a much greater social life, which is tremendously important. I am now approaching 75 and the falling to bits has slowed down a little, positivity definitely  works.