My 34 year old daughter had rare tumour

FormerMember
FormerMember
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Hi everyone. I am the mother of a lovely 34 year old daughter who had a cancerous tumour removed 18 months ago. She has had a few clear scans and she is having another one tomorrow. I am so heartbroken and acted this has happened. I am so scared of these scans. I can’t believe this has happened to her. I would love to know how parents of adult children with cancer cope. 
Thank you  

  • Hi Rebecca 

    Thank you so much for your message. Nicholas enjoyed his time in London  and was lucky enough to meet up with his fellow uni students/housemates. He loves it up there and it's his aim to hopefully get back there to work.  

    Wonderful news about your daughters scan. I am glad she is getting psychological help it's a very, very stressful thing to go through for the patient and us as family.  We were in Tenby (West Wales) when we found out nicholas news over the phone. He didn't tell us he was in hospital for 2 days...didn't want to worry us as we were away with chloe before she started uni.  I love Tenby but it's going to hold different memory for me now if I go back. 

    You sound a lovely person, I have met so many lovely people online whilst going through this. You just know you would be friends in the real world. I would love to meet for a coffee. Where in London do you live?

    Half Welsh husband is good as well...where near Cardiff are his relatives.  We live in the Rhondda valley. 

    Nicholas is due his transplant on the 14th February.  Got a lot of appointments before then. 

    Message me anytime and thanks for the support (Diolch)

    Hayley x

    Hayley 
  • FormerMember
    FormerMember in reply to Cyprusfan

    Hi Hayley. I have been thinking about you and your so.  How is he doing and how are you? I hope everything is ok. Love. Rebecca xxxx

  • FormerMember
    FormerMember

    Hi there RMoa, I to have a wonderful son who’s just turned 37. He has a young beautiful family, but has lived with a rare cancer called fibrolamellar hepatoma. There are only 200 cases world wide each year. It started in his liver, and he’s had several operations during a 7 year battle. He’s now termed ‘end of life’, but still continues to stun Everyone with his determination. 
    unfortunately there seems to be no support for mums. If anyone has any advise.... thank you. 

  • FormerMember
    FormerMember

    Hi RMoa

    My Daughter is 32 with bowel cancer.  I know how you are feeling right now, I can't  sleep can't think of anything else.

    My daughters cancer has spread to the lymph nodes in her stomach and we are told that it is incurable!

    She has just started a new targeting drug. The waiting for scan results is unbearable. My daughter  has to be scanned every 3 months to make sure it's working.

    Life seems so unfair. I am seeing strength in my daughter  that I never new she had, and I think that we just have to be strong for them and I usually phone Macmillan at least once a week and cry my heart out to them!  They are amazing.

    It's the worst news any mum can get that their child has cancer.  

    My thoughts are with you