My husband is taking these steroids. He has metaststic brain cancer and has lost use of his left hand.
He has a swelling on his brain so the steroids are reducing this but they have changed his personality massively! He's selfish, gets annoyed easily, never stops talking, and we argue quite a lot.
Im his carer and need to help him get dressed etc, he gets annoyed, if he cant do it himself and doesnt want me to help. By the time he needs my help he's furious with himself. The mood swings are hard to cope with, the selfishness even more so
Anyone else going through this?
Hi DevaTi and a warm welcome to the Macmillan Community but I am sorry to hear about your husband.
Having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable), Asbestosis and recently Prostate Cancer that navigating this journey can be such a stressful and challenging time…… and I can testify to steroids being a challenge…… but talking with and getting support from people who have walked or are walking the ‘exact same' treatment journey, be it as a patient or caregiver can help a lot.
This New to Community area is like our reception desk where we try and link you in with the best areas in the community. The community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….
……. support group.
This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from posting in our general……
Carers only (that I see you have joined)
……. where you will connect with a wide range of members navigating the exact same support challenges.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Do get back to me if you need further help navigating the community.
