I am 69. I was diagnosed with AML in July 2026 and told I had 3 weeks to live. Post intensive Chemo I had a successful stem cell transplant a year ago. I have mutations which are discernible but not tradable. I am awaiting the results of a bone Marrow which will show whether or not a DLI has been successful. I travel, socialise and feel good but am haunted by a fear of relapse because I will never go through this again
Hi Lettylov and a very warm welcome to the Macmillan Community.
I am Mike and I help out around our blood cancer groups.
I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma)……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well……. Especially as I have also had 2 Allogenic (donor) Stem Cell Transplants (June 2014 then Oct 2015)…… having at least 6 DLIs over my 2 years treatment but ai am 11 years out from my last treatment, turning 71 in a few weeks and getting in with life.
I was also diagnosed with Asbestosis in 2012 and Prostate Cancer this April past.
Talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated…….
…….. support groups.
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
I will keep an eye open for your post in the group(s)
