My daughter 43 was diagnosed with bowel cancer out of the blue in October 2024. She had emergency surgery the next day and we found out her tumour had burst. She had chemotherapy. In October 2025 her cancer returned but in her peritoneum and she had further chemotherapy In June this year she had HIPEC surgery in Basingstoke. But last month - October - following a PET. Scan they found further cancer on the peritoneum. Her prognosis is 18 months- 2 years. She may be able to have this new PIPAC treatment and has been offered further chemotherapy.
I just feel helpless as her Mother- I brought her into the world and should not have to see her leave it I want to see if anyone has any experience if other ideas of treatment options etc
I wish there was an independent cancer advisor to point you in the right direction to help
how do you balance treatment versus quality of your remaining time? So many questions, sorry for the little g post
Hi Sewh and a warm welcome to the Macmillan Community but I am sorry to hear about your daughter.
Having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable), Asbestosis and recently Prostate Cancer….. that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' treatment journey, be it as a patient or caregiver can help a lot.
This New to Community area is like our reception desk where we try and link you in with the best areas in the community. The community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….
……. support group.
This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your daughter and indeed yourself you may benefit from joining and posting in our general……
Carers only (if you are her caregiver)
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
Hi again Sewh
I am now 11 years out from my last treatment although I am being monitored for my Prostate Cancer……
The amazing developments in treatment over the past 26 years turned my first incurable Lymphoma with a then median survival of 3-5 years to be a life long, treatable when required chronic health condition.
