Hi everyone. I have just been diagnosed a week or two ago with womb cancer. I occasionally feel terror, but often feel unbelievably positive and optimistic which scares me as I am not usually like that - I'm a pessimist! It makes me worry more bad news will knock me off my feet. Anyway, I don't know where to go to ask my question which is if anyone has had 5-6 months on Megace while they lose weight for their hysterectomy, and if it there is any chance things won't get worse in that time. I'm too fat for the operation at the moment - which I'm ashamed and angry with myself about - but what if it just spreads before the surgery? Anyway, has anyone been in my shoes? Also, do you all think every ache and pain is a spread? Thanks
Hi Babysteps
Welcome to the Online Community.
I am sorry to hear that you have had a diagnosis of womb cancer.
We do have a forum for ladies who have a diagnosis of womb cancer and it may help to post in there to get support from others going through a similar journey. I will pop a link below that will take you there.
My own diagnosis was in 2022 and I can remember it felt a bit of a surreal time. Sometimes I felt really scared and at other times I felt sort of numb to it all and just like I was going through the motions. I think sometimes it can be the shock of the diagnosis and it can make our emotions go a bit all over the place. I know they did for me.
You are not being weird. There is no right or wrong way to react to a diagnosis. For me it felt best to just go with the flow with how I was feeling and accept that it was normal.
I am normally around the womb group and there are some ladies on there who have also had hormonal treatment while they are trying to lose a bit of weight or where they have coexisting medical issues that mean surgery is not possible at that time.
The megace is being used to stabilise/treat the cancer by affecting the hormones that can feed it. So it is effectively working in the background whilst you can lose enough weight for surgery to become an option.
I think we all worry about the spread of cancer and it is a natural thing to worry about any aches and pains. A low grade endometrial cancer is typically slow growing and the megace should help prevent this. If you get any unusual or worrying symptoms whilst taking this medication then it would be wise to consult your GP.
I hope that you are being offered some support with losing weight as it is not an easy thing to do.
I will look out for you in the Womb forum. Do have a look there as there are many lovely ladies on there undergoing a variety of treatments for their cancer and they will want to offer you support.
We do have the Support Line available from 8am-8pm daily if it would help to talk things through.
Jane
