Anal cancer

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Hi, I have just finished having all the scans, CT, PET & MRI. As well as EUA & biopsies on my anus. After finding a raised lymph node in my groin they are almost certain I have anal cancer. The treatment sounds horrendous! I really struggle with pain killers (only found this out after the biopsies) making me constipated. Does anyone know of alternative pain relief?

Any tips going forward would be gratefully received, thank you.

Beesuit 25 days ago

So sorry to read about your problems. The Community has a dedicated group for anal cancer Anal Cancer Forum

The best thing would be to introduce yourself there with this question. Just click on the link I made. As an aside, I was on industrial amounts of morphine for twelve weeks when I had six weeks of radiotherapy for a different cancer and Laxido, taken alongside the morphine and supplied by the hospital, kept me right.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Bungle1 24 days ago

Hi Jojo1026 Welcome to the club although I'm sorry you have found yourself here. I'm nearly 2 years post treatment for AC and cancer free. The treatment is not a walk in the park but not as bad as I had expected but we all react and cope differently. Is the pain internal or external ?. I see Beesuit has put a link to the anal cancer section it's very supportive. You can post there ask anything nothing is out of bounds. Everyone there will support you however you need. Or I'm happy to answer any questions you may have on this thread. Sending hugs. X

Jojo1026 24 days ago in reply to Bungle1

Hi, thanks so much for your reply & advice. It's amazing to hear that the treatment wasn't as bad as you thought. I'm expecting the worst. I have no pain at the moment it was just post biopsy. Am going to join the anal cancer group now I've had it confirmed. I'm worried about incontinence, can't imagine how embarrassing that could be! Great to hear from someone who has recovered. Thanks for the hug

Bungle1 24 days ago in reply to Jojo1026

Hi Jojo1026 I see you've joined us in the ac group. Your worry about incontinence is valid although I must admit one I hadn't even thought about when I was at your stage. During treatment that wasn't a problem for me but after and even now I have to move quickly on occasions. You said about exercise on your other post, I was a regular at the gym but chose not to during treatment as I didnt want to risk an infection although physically I could of gone for the first couple of weeks, after that not so much, but we are all different, I've seen people in the group who have exercised all the way through. You just have to do what's right for you. Xx

Jojo1026 24 days ago in reply to Bungle1

Thanks for taking time to reply. I had visions of being mortified with the incontinence but I just need to be near a loo, then I will. I have cancelled my gym membership & will just do it at home wh I feel able & also walk when I can. It's wonderful to be able to ask real people these questions xx