Hello I’m new here. I was diagnosed with myxofibrosarcoma in November 25 and had limb saving surgery in December 25. I am still in the process of rehabilitation. It’s taking a long time. Wondering if anyone has had a similar experience.
Hi Dancer and a very warm welcome to the Macmillan Community but so sorry to hear about your diagnosis and post treatment rehabilitation.
Having been on my cancer journey for over 26 years (first diagnosed in 1999 at 43) with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) then Asbestosis and recently Prostate Cancer that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
As you have noticed the Community is actually divided into dedicated Support Groups (Discussion Rooms) and I can see that you have already joined and put up a post in our dedicated…….
…….. support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
You can also put myxofibrosarcoma into the community search tool 
near the top as this will bring up all the past discussions about myxofibrosarcoma.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Thank you for the information and encouragement. You sound as if you’ve had one heck of a journey. Well done you for sticking with it. I’m determined to get back to my dancing and hiking. I think I have a tendency to push a bit too hard sometimes and then it sets me back. I need to learn patience but I’m afraid that’s not in my DNA. 
♀️Take care and keeeeeep living.
Every cancer journey can be a rollercoaster…. and being a patient patient tasks on a new mining.
Due to me having to be treated for my 2 rare T-Cell NHLs at the same time my main treatment journey from Oct 2013 to Oct 2015 was rather complicated (See my story) but I am coming up to 11 years out from my last treatment, I turn 71 in Nov and I am doing great.
The post treatment 1/3rd of the journey (the 1st 1/3rd is the diagnosis with the second 1/3rd being treatment) can often be the most challenging as there is much less support…..
I left hospital in early Nov 2015 in a wheelchair as I was bed bound for a few weeks so lost a lot of muscle mass so I had a lot of physio to get me up on my feet and back walking.
These signs are everywhere in the 2 hospitals I was treated at…… and it is very true. I went into the hospital in early Oct 2015 as a healthy active nearly 69 year old…… I left a month Mayer with the body if a 90 year old.
You may find it helpful to make a cuppa and have a look at this great paper
After Treatment Finishes - Then What?
by Dr Peter Harvey as it highlights the post treatment milestones.
Keep on keeping on Dancer you will get there.
