My partner was diagnosed with cancerous brain tumour 2018 after having a seizure. Has had 2 brain operaterarions. Radiotherapy. Steriods. Now on second chemotherapy due to regrowth. He however now has left side weakness, is having carers and equipment that is adapted so he can live more independently. Hes 38. Military back ground.
Im joing support groups as I thought I was ok but I think im now struggling myself with how to best support him while making sure im ok.
Hi S.J.D and a very warm welcome to the Macmillan Community but I am so sorry to hear about your partners diagnosis.
Having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable), Asbestosis and recently Prostate Cancer that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms)…… and I can see that you have already found and put up a post in our dedicated…..
……. you may also want to look at our
….and
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
