Hi everyone:)
I had a lower anterior resection for rectal cancer 6 years ago.
All ok for two years then 2 nodules found in lung. Went on watch and wait for 2 years as they were tiny and slow growing then had SABR.
All ok for another 2 years then was just about to have SABR again for another lung nodule when I started with tongue deviation! After 8 doctors appointments (!) I was eventually sent to A&E and they found a lesion in the bone at base of skull! Emergency radiotherapy which held it back for 5 months then it started to progress again- alerted by onset of double vision! My vision improved but a week ago I started with double vision again even though my scans showing stable were only 2 weeks ago.
Now been on capecitabine,Bevacizumab and Denosumab for 6 months.
i believe further radiotherapy isn’t an option so looking to pay privately for a second opinion with a specialist in London who specialises in neurological issues.
i wondered if anyone had similar metastatic spread to base of skull and if any treatment was successful?
Thank you for reading x
Hi Nallim
Welcome to the community, I'm Daisy53 one of the Community Champions on this site. I'm sorry to hear that you were diagnosed with bowel cancer and that it's spread to the base of your skull. I suggest that you join the Bowel Cancer forum and put your question into that forum where you'll hopefully get an answer. Here's the link to that forum: Bowel (colon and rectal) cancer forum. .
Wishing you the best of luck with your treatment.
Best wishes
Daisy53
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