Hi everyone,
I am a 29 year old woman and I was diagnosed a few weeks ago with a specific type of germ cell cancer called a yolk sac tumor. It is very rare and very aggressive but also super responsive to chemo. I had surgery five weeks ago and 10cm tumor was removed along with my ovary and fallopian tube. Thankfully it was caught early but now I have 2 years with a 50% chance it comes back. I am doing weekly blood tests to monitor my AFP marker which is reassuring. Hopefully it doesnt come back and I will not have to do chemo but it is a little daunting knowing that if one test comes with less than ideal results, I will have to go and do chemo immediately. Happy to have wonderful support groups like this though
Hi Maariyaah and welcome to the Macmillan community.
Im sorry you haven’t received a reply yet, but sometimes it can take a little longer when you have a rarer type of tumour.
I’d like to suggest that you join us in the ovarian cancer group, as you will be able to connect there with others who my have experience of this type of tumour and who will also have experience of surgery and chemotherapy.
The link to join the group is below, and you will be able to join it by clicking on the “join” banner which you’ll see when the page opens
Sarah xx
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Thank you so much Sarah 
I really appreciate your message. I will join the forum you suggested!
