Hi all,
My daughter 37 yrs old has been diagnosed with Metastatic breast cancer biopsy confirmed grade 2 invasive lobular carcinoma still to confirm likely pleomorphic which is ER 8 PR 7 and HER2 2+ positive. Awaiting FISH.
I loss my mother in March this year, my sister had a stroke in August and now my daughter has Metastatic breast cancer. This is all new to us and I am trying to get educated while my world is falling apart. However, we do have an unwavering believe that we'll get through this. She has two beautiful boys 8 and 4 to see grow up.
After being admitted to acute oncology yesterday she is starting chemo today at Charing Cross and although some tests are yet to be confirmed/performed, they are eager to start treatment. We would like her to be transferred to the Royal Marsden as this is also very close to her. We have already requested referral/transfer of care via her GP. Does anyone have experience of being transferred? Referral timeframes? Care at RM breast unit?
Charing Cross have been very good (apart from A&E) with rapid testing however, as we're so close to RM and given their expertise, reduced risk of acquiring HCAIs think this would be a better option, if accepted! Thanks in advance for any responses/advice.
Hi Starphase35
Welcone to MacMillan. I am one of the community champions on our breast cancer forums and I live with metastatic breast cancer.
I am sorry your daughter has been diagnosed with metastatic breast cancer and that this has come on top of the loss of your mother and your sister’s own health challenges. Be assured your daughter will get very good care whichever hospital she is under. My only experience of trying to get transferred to another hospital was when I wanted inter-operative radiotherapy, which is only offered in a handful of hospitals. Trying to do this added in delays and eventually led me to staying under my first hospital as the benefits of the procedure didn’t outweigh the benefits of getting started with treatment. I did use the Royal Marden’s private second opinion service when I was having issues with immunotherapy and my consultant wanted to stop treatment. I didn’t get any new or different information out of it and it reinforced the view that my oncologist is doing a good job.
I can see you have joined our breast cancer forum. You (and your daughter) could also get support from our Secondary breast cancer forum
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
