My husband was diagnosed with high grade glioblastoma in Dec 2025. Had the tumour debulked end of January then had infection in bone flap which they removed. To add to this he then had infection in another area of brain and a chest infection. Spent 7 weeks in hospital including spells in ITU. He eventually came home in April very weak. The scans showed that the tumour remained stable through all of this, so they wanted to wait and watch rather than starting treatment so that he could get stronger. End of June he had symptoms and the tumour showed signs of growing so he had 3 weeks of radiotherapy which ended 3 weeks ago. Its been a roller coaster of emotions for both of us. What I am struggling with is that he is more exhausted now than when he was having his treatment, there seems to be no light at the end of the tunnel. Can only keep everything crossed and hope in the coming weeks he will get stronger.
