Hi I was diagnosed with a sarcoma tumor in my thigh in February {after being misdiagnosed in June last year}. I had 5 weeks of intense radiotherapy then major surgery to remove it. I was over the moon to hear that the margins were cancer free. My first scan after the surgery has shown that it has spread to my lungs and cannot be cured. I start chemo soon which will hopefully buy me some more time.
I am terrified, I am about to celebrate my 60th birthday, I am a young energetic 60 year old with a 2 year old grand daughter who I wont live to see grow up, a son with complex additional needs who will never understand what has happened to his mum. I have no idea how to cope with this. I had so many plans for the future and have worked so hard to plan and pay for these. I have always been a glass have full person full of energy and possitivity. I just dont know how to get through this,!my I am not scared of dying of leaving my sons and grand daughter without me. I am heart broken!
Any advise would be welcome.
Hi Purescott and a very warm welcome to the Macmillan Community but so sorry to hear about your diagnosis.
I know from experience having been on my cancer journey for over 26 years (first diagnosed in 1999 at 43) with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) then Asbestosis and recently Prostate Cancer that navigating this incurable journey can be such a stressful and challenging time but talking with and getting support from people who are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated…….
Living with incurable cancer - incurable patients only
…….. support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
It is what it is Purescott we just need to live to the full as long as we can.
