Hi I’m 35 from Liverpool
currently in the process of my lymphoma diagnosis had one biopsy which was inconclusive got a chest ct on 28th may then chest biopsy wish me luck
Ive been waiting since feb to be diagnosed I just want answers and treatment now
Hi Sianxfx and a warm welcome to the Macmillan Community but I am sorry to see you are on a lymphoma diagnosis journey.
I am Mike and I help out around our various Lymphoma groups.
I have been on my Lymphoma journey just over 26 years first diagnosed way back in 1999 at 43……. when my first rare (8 in a million) ‘incurable’ but treatable slow growing Low-Grade Cutaneous T-Cell Non Hodgkin’s Lymphoma (NHL) was found.
I eventually reached Stage 4a in late 2013 when a second, also rare (4 in a million) type of very aggressive High-Grade Peripheral T-Cell NHL was then presenting so although my Lymphoma ‘type’ may be different I most definitely appreciate the challenges of this journey rather well……. having had over 750hrs of chemo, 45 radiotherapy zaps and 2 Allogenic (donor) Stem Cell Transplants between Oct 2013 and Oct 2015.
With over 60 types and sub-types of Lymphoma until you have a clear diagnosis it’s best to stick to this area till you have clear information as there is not one treatment fits all Lymphomas.
Taking significant periods of time to get a clear diagnosis is actually not that unusual…… as some types of Lymphoma are hard to pinpoint……. back in 1999 it took a full year and 6 biopsies to get my diagnosis….. fortunately things have improved over the past 26 years.
Ask your questions and I will do my best to help you out.
