Recently diagnosed with TNBC.

Hi Dordor and a very warm welcome to the Macmillan Community but so sorry to hear about your TNBC diagnosis. 

I know from experience having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.

The Community is actually divided into dedicated Support Groups (Discussion Rooms)…. and I can see that you have already joined our dedicated……..

      Triple negative breast cancer

…….. support group.

This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

To connect in with the group please click on the link above……. then once the group page opens you can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.

Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

Do get back to me if you need further help navigating the community.

Thanks for your reply. I've never been on a support group before so not sure what I'm doing but will get there !

I'm 67 so technology isn't my fave thing but I do like to try 

….. I am 70 so no excuse 

Just remember you can find the groups you have joined by clicking in your community name Dordor  then to find the posts you have put up click on MORE near the top then ACTIVITY…… these world is your oyster

Hi Dordor 

I am sorry you have been diagnosed with TNBC. I also have TNBC. I was first diagnosed in early 22 and unfortunately found out a few months later that my cancer had spread to my liver. However I achieved remission through treatment and have stayed stable. Thehighlander mentions the triple negative breast cancer forum. Unfortunately it’s usually quiet on there but you will find a lot of the posters on the much busier Breast cancer forum have TNBC. 

Do you know yet what your treatment plan is? Unfortunately TNBC almost always requires chemo but your plan will depend on the size of tumour and whether there is any suspicion of lymph node involvement. It is scary but a lot of the data you find on Google about TNBC is out of date. Whilst treatment options are more limited than for other forms of breast cancer, there are treatments. And I guess I am proof that it can work despite having a TNBC that was more advanced than anyone thought at the start. 

Thank you so much for your response. No, I have no treatment plan yet as they are taking one step at a time and concentrating on my surgery..due 29th May, (my granddaughter's 6th Birthday !!) I'm more scared of chemo than anything else but the positive posts are really helping me to calm down...a little!