My OH had Bladder Cancer about 12 years ago.
He had BCG treatment which seemed to have worked until 2024 when the found that it had gone up to his Kidney.
Is Kidney was removed and started Chemotherapy. He thought that would be the cure.
2025 was told it had spread with a concerning Nodule in both Lungs.
He has had One Chemo and immunotherapy treatment and was okay after that. He had his second treatment which was just Chemotherapy. He had a scan
with Contrast later that week.
Then he was supposed to have a week off treatment but began having itchy Rash all over and flu like symptoms, Shivering and Feverish.
I got in touch with the helpline and they wanted to see him at the hospital. They said he could come home after having bloods, temperature etc. done.
That was on the Wednesday. The following Monday, after spending an awful weekend with rash all over his body, very inflamed and itchy. He was obviously
very poorly.
Phoned helpline again and told to take him to hospital again. He was very weak and listless. He was admitted and spend seven days in there.
He had Antibiotic drips and his feet were very swollen and peeling. He had Antihystamin to help with the itching. Onchologist spoke to him as they were not
sure if it was something else that had caused the illness other than the Chemo. He said that treatment would resume in a few weeks time with half the strength.
OH told me that he had been thinking about it and did not want to have Chemo any more.
He had been told before Chemo that without it, the prognosis was 12 months. He could have the Chemo and immunisation treatment for maximum of two
years, which might give him a few more years of life.
It is such a worry. He will be talking to the Oncologist in two weeks time.
Has this sort of thing happened to anyone else? I just needed to put it all down in writing to help me, us, deal with this.
Hi Cacran and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and I'm sorry to read how much you and your husband have been through over the years,
The online community is divided into different support groups so I'm going to recommend that you join the bladder cancer and secondary lung cancer groups as you'll then connect directly with others who have the same type of cancer as your husband.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your husband's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
