Good morning
I have just joined, long story short, I was diagnosed last November with gastric malt lymphoma, this was as a result of h pylori.
H. pylori was treated with a course of antibiotics over 10 days last November.
I then had a follow-up gastroscopy in February to check if the lymphoma had gone; sometimes it can take a while, but it was still there.
Following an appointment with my haematologist on Friday, I've been told I now have to have 4 sessions of rituximab and I find this a tad overwhelming.
Can anyone relate please or help with what the treatment is like etc, was given a printed out brochure which I found a bit daunting.
Thank you all xxx
Hi Treesjm and warm very welcome to the Macmillan Community although I am sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.
I am Mike and I help out around our Lymphoma groups.
I don’t have Marginal Zone NHL but I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma)……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ my be different I most definitely appreciate the challenges of this journey rather well.
There are over 60 types and sub-types of Lymphoma so we can’t have a group for every type but I recommend you join our…..
General Non Hodgkin's Lymphoma
…… support group as this is a safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
Click on the link above and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
I will keep an eye open for you but if you are not sure what type you have pleased do get back to me on this post and I will help you out further.
Hi at Treesjm
I see that you have joined the group….. well done.
I do see that you have put up a reply to an older post - let’s look to see if the group member is still using the community….. many people do move away from the site once their treatments are over….
This is why is best to put your own post up in the group as this will keep your support in one place.
I had over 600hrs of Ritxumab as part of my 6 cycles of very aggressive R-EPOCH….. and honestly I had no issues with this treatment.
Do put up a post in the group and we….. along with others can give you a hand getting your head round this.
