Hello I have CLL diagnosed 2022 watch and wait. Anyone here have this Also anyone round west midlands know any support groups for CLL I don't need a group with a mix of people it CLL I need not being rude so don't take it the wrong way its like info about what I have any trials or treatment should I be taking anything I'm not on anything. I'm fine with online also but didn't think anyone would reply so thinking forward thanks in advance.. S....
Hi Mr Bean and a warm welcome to the Community.
I am Mike and I help out around our various Blood Cancer groups.
I know from experience having been on my cancer journey coming up to 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
…….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
I will keep an eye open for you in the group.
Hi Mr Bean
I’m Anne, one of the Community Champions here on the Online Community, and I've just popped on as I think you might have meant to post this in the CLL group where I can see you've posted before. I'm sure if there are other members of the group who live in the West Midlands they'll let you know about any CLL groups that they're aware of. The quickest way to get to the online group is to click on my link.
You could also put your postcode in the search bar in In Your Area and it will bring up what support services are available to you locally.
Wishing you all the best
"Never regret a day in your life, good days give you happiness, bad days give you experience"
