Hi all,
I am new to the group.
I was diagnosed with vulva Vin 2/3 which is changing.
I have had three lots of surgery. Inner labia biopsy, which resulted in Vin 2/3 then full inner Labia was removed.
Biopsies from both sides of the clitaris which as resulted in Vin 2/3 changing to the left, right and centre of the vulva area.
I have been told that i need to go to Leeds for large surgery to extract all areas.
not a clue as yet what that means for me.
I know this is rare but I am hoping there is someone out there who as experience of this.
I am nervous that it will still be there after and unsure what else they would do.
Any advice would be greatly appreciated
Hi Pampam my name is Chelle and I am one of the online community champs.
The online community is set up with individual forums so members get the support from other members who have the same cancer. You can join the Vulva cancer forum by clicking on the link I have created. There are lots of past posts there which you can read which may help you understand a little more about what you are going through. You can also post your question there to see if anyone else has been through something similar.
You can also chat to someone at the MacMillan support line who are available 7 days a week from 8am until 8pm on 0808 808 00 00.
Can I also suggest you look at the gynae cancer charity https://eveappeal.org.uk/ where there is lots of information and advice.
Thank you 
