Vulvar Vin 2/3 Changing

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Hi all,

I am new to the group.

I was diagnosed with vulva Vin 2/3 which  is changing.

I have had three lots of surgery. Inner labia biopsy, which resulted in Vin 2/3 then full inner Labia was removed.

Biopsies from both sides of the clitaris which as resulted in Vin 2/3 changing to the left, right and centre of the vulva area.

I have been told that i need to go to Leeds for large surgery to extract all areas.

not a clue as yet what that means for me.

I know this is rare but I am hoping there is someone out there who as experience of this.

I am nervous that it will still be there after and unsure what else they would do.

Any advice would be greatly appreciated