Hallo good people
Shell-shocked at being told yesterday I have polycythemia and wondering if anyone has good sources of info/help. Keen to 'meet' others in the same boat to care and share with. Thanks so much 
Hi Andromeda and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis.
I am Mike and I help out around our blood cancer groups…… I know from experience having been on my blood cancer journey now coming up to 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
MDS/MPN/ET/PV/myelofibrosis (MF)
…….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
Hallo Mike the Highlander
Thanks so much and all kindest wishes
Suzie
Hi Suzie Andromeda do ensure you click on this link 
MDS/MPN/ET/PV/myelofibrosis (MF) and join and post in our dedicated PV group as this will help you connect with others on the same journey.
