Hello geordie (Dodthepainter), a warm welcome to the community although I'm very sorry you have the need to join. I'm Derek,one of the community champions on here. I had lung cancer treated nearly 12 years ago although it was non small cell adenocarcinoma and not asbestos related so I have no experience of your type.
I'd like to suggest you repost your question on our Lung Cancer Forum where I'm sure you'll receive replies from others who are more able to comment.
Click on the limk below and it'll take you straight there.
With my best wishes,
Derek.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hi Dodthepainter and a second welcome from me.
I have been on my Lymphoma (blood cancer) journey coming up to 26 years with 2 rare types of Lymphoma (one incurable) but I was also diagnosed in 2012 with Asbestos related Pleural Thickening and Pleural Plaque (Right Lung)….. fortunately my Asbestosis is stable at the moment moment but will remain incurable.
Along with the Lung Cancer group that my friend Derek excavator highlighted you may want to scan through the Mesothelioma group as you may bump into further some members in the same position as you but not with full on Mesothelioma.
Living with an incurable cancer is hard work but talking with others who are navigating the same pathway can help so do also look at our dedicated…..
Living with incurable cancer - incurable patients only
…… support group as this group is a safe place to talk with others in the same basics position although not the same cancer type.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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