Hello

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ve been on this cancer journey id say from 16 years ago although i had my thyroid removed 28 years ago.At the time i didnt acknowledge that it was part of the bigger picture that was to follow.the thyroid was pushing on my windpipe.so it had to go.

I had kids and was urged to get mammograms earlier by a loved one due to family advice.i  was eligible and started at 40.42 grade 3 was found in breast , had removal and breast alignment.i was diagnosed with cowdens syndrome, at the time i didnt really know but used to look at American sites.i find myself helpjng professionals regarding my 1 in 200000 .im a rare bird.8 years ago, i felt something wasnt right in other breast although mamograms were clear.a grade 2 was found.i had a belt and braces aporoach and this so and so was found on my kidney.so ive opted for monitoring as consultants believe it is so slow growing.i also had 2 spots on my lungs which are now nodules ' subplureal nodules' which has been classed as benign  so have ct scans for that to determine what it is for ' peace of mind'.im told it could be scarring from chest infections.

Got ct scan for this in 2 weeks

Im very grateful to nhs, monitoring me , but im trying to keep my anxiety in order.anyone got any advice on anything....i dont want to google but knowledge is a powerful thing sometimes.i try and box it and bring it out of the cupboard when and if needed.

My family are aware of this but i prefer to just be me out of my family.i.e.not chat about it 

All the best to you all on your journeys.this cancer journey is a right old roller coaster. Not sure what to ask but im a bit freaked out.

  • Hi there. Can you visit a MacMillan drop-in to have a chat? I’ve just had confirmation of cancer and waiting for a specific diagnosis so was told about the drop-ins/day centres yesterday. Ive suspected cancer for a year and since confirmation told 4 people, only one of whom I kind of regret. 1 of them is in a different country to me and this made it surprisingly easy to talk about my current situation. I’ve told them all they’re not allowed to ask me how I am out of the blue because I’m not thinking about it all the time but I’ll keep them updated. Otherwise I’m keeping it to myself now until I get the diagnosis of stage and type, plus treatment plan. Hope there’s some help there. Enjoy today!

  • Hi im new to the journey but already fed up with people texting and asking how I am. I dont kbow.. I like your comme t of Dont ask. I was going to send a message saying that but felt awful. I know they care. So I m going to say dont ask how its going ill update you with news as and when I can or if something changes.  X 

  • I think you can do whatever you want re. this - take the control where you have it is my philosophy. I also don’t know how I feel, certainly not from one moment to the next but I know I can’t tolerate other people’s emotions as well as my own. I will absolutely acknowledge how this will impact people but it will have to be on my terms xx