ve been on this cancer journey id say from 16 years ago although i had my thyroid removed 28 years ago.At the time i didnt acknowledge that it was part of the bigger picture that was to follow.the thyroid was pushing on my windpipe.so it had to go.
I had kids and was urged to get mammograms earlier by a loved one due to family advice.i was eligible and started at 40.42 grade 3 was found in breast , had removal and breast alignment.i was diagnosed with cowdens syndrome, at the time i didnt really know but used to look at American sites.i find myself helpjng professionals regarding my 1 in 200000 .im a rare bird.8 years ago, i felt something wasnt right in other breast although mamograms were clear.a grade 2 was found.i had a belt and braces aporoach and this so and so was found on my kidney.so ive opted for monitoring as consultants believe it is so slow growing.i also had 2 spots on my lungs which are now nodules ' subplureal nodules' which has been classed as benign so have ct scans for that to determine what it is for ' peace of mind'.im told it could be scarring from chest infections.
Got ct scan for this in 2 weeks
Im very grateful to nhs, monitoring me , but im trying to keep my anxiety in order.anyone got any advice on anything....i dont want to google but knowledge is a powerful thing sometimes.i try and box it and bring it out of the cupboard when and if needed.
My family are aware of this but i prefer to just be me out of my family.i.e.not chat about it
All the best to you all on your journeys.this cancer journey is a right old roller coaster. Not sure what to ask but im a bit freaked out.
Hi there. Can you visit a MacMillan drop-in to have a chat? I’ve just had confirmation of cancer and waiting for a specific diagnosis so was told about the drop-ins/day centres yesterday. Ive suspected cancer for a year and since confirmation told 4 people, only one of whom I kind of regret. 1 of them is in a different country to me and this made it surprisingly easy to talk about my current situation. I’ve told them all they’re not allowed to ask me how I am out of the blue because I’m not thinking about it all the time but I’ll keep them updated. Otherwise I’m keeping it to myself now until I get the diagnosis of stage and type, plus treatment plan. Hope there’s some help there. Enjoy today!
Hi im new to the journey but already fed up with people texting and asking how I am. I dont kbow.. I like your comme t of Dont ask. I was going to send a message saying that but felt awful. I know they care. So I m going to say dont ask how its going ill update you with news as and when I can or if something changes. X
I think you can do whatever you want re. this - take the control where you have it is my philosophy. I also don’t know how I feel, certainly not from one moment to the next but I know I can’t tolerate other people’s emotions as well as my own. I will absolutely acknowledge how this will impact people but it will have to be on my terms xx
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