Newly diagnosed and new here

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Hello,

Not really sure what I’m looking for here as this is all so new territory for me. I have just been diagnosed with Triple Negative Breast Cancer and my mind instantly spiralled into so many negative thoughts. I’ve had a few days to process the shock and now find myself trying to educate myself and project manage this situation. I’m usually the go to person to solve problems and organise events, hence I’m not very good at asking for some emotional support.
whilst I’m trying to stay positive, I find myself going to bed of an evening and secretly crying. I have a very practical husband and lovely friends and family but still feel ever so lonely. Not sure if anyone can relate to this, if so would love to hear from you. 

Thanks

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis. 

    I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..

       Triple negative breast cancer

    …….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thank you so much for your response and I’ll definitely look into Maggies and I’ve joined the Triple Negative Breast Cancer forum. Your comments are really encouraging and reassuring to know there’s support who truly understand.

  • Yes I can relate to how you are feeling at the moment because I have all the negative thoughts and secret crying.  However, I told my husband and my MacMillan nurse I wasn't coping and it did make a huge difference.  I still have the thoughts and feelings but now I have expressed them and used this forum it makes you realise you not alone and having a perfectly normal reaction.  Be kind to yourself.

  • Thank you so much Cazzie, sometimes it’s a great help just knowing you’ve got a method of talking to people who truly understand what you’re going through. Thank you for taking the time to let me know and I’m wishing you a positive outcome