New here

I have a radical robotic prostectomy 5 weeks ago, catheterised for 2 weeks and have been incontinent ever since, no urge to urinate and getting through 7 ish pull up pants a day and also have to change overnight - I was told by the consultant this could last 6 months and in which case he would provide surgery for a sling in the bladder, has anyone else experience this. looking at changing from pull ups to conveen 

Hi 1961 and Jayfarmer and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis. 

I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.

The Community is actually divided into dedicated Support Groups (Discussion Rooms) and I do see that you 1961 have already joined and put up a post in our dedicated…..

   Prostate cancer

…….. support group…….. Jayfarmer  I would suggest you should look to do the same as  Prostate cancer group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.

Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

Do get back to me if you need further help navigating the community.