My 13 year old son had been diagnosed with Chronic Myeloid Leukaemia (CML) usually an older person thing, very uncommon in children...I'm here looking for others in our position I guess.
Hi HazelB and a warm welcome to the Macmillan Community but I am sorry to hear about your son’s CML diagnosis.
I am Mike and I help out around our blood cancer groups, I don’t have CML but have been living with and treated for 2 rare types of Non Hodgkin’s Lymphoma for over 25 years.
CML is on the rare side and more so in someone so young but let’s see who if anyone has navigated the same journey.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….
……. support group.
This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
To connect with the group click on the “Bold Link” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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