Hi everyone!
I am currently around the one year anniversary of my diagnosis and surgery. I have (had) thyroid cancer - surgery to remove my entire thyroid followed by radioactive iodine treatment. I am awaiting my 9 months post treatment formal review.
I am very emotional recently - I feel very alone with my feelings and thoughts because I don’t have anyone around me who gets it. I joined the community to chat to people who get it. Who get the ‘I have cancer’ part. Who understand the feelings of lost after treatment, the ‘whats next?’ How to navigate all this emotionally. It is hitting me now.
Hi Zsazsum and a very warm welcome to the Macmillan Community but sorry to hear about the journey you have been on.
I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
…….. support groups….. These groups are safes place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support from people who are out the other side.
To connect in with a group please click on the link(s) above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
