New member intro - looking for people to chat to

Hi Zsazsum and a very warm welcome to the Macmillan Community but sorry to hear about the journey you have been on.

I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.

The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..

Thyroid cancer

Life after Cancer Group

…….. support groups…..  These groups are safes place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support from people who are out the other side.

To connect in with a group please click on the link(s) above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.

You can copy and paste the text from this post into your new post.

The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.

Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

Do get back to me if you need further help navigating the community. 

Hi 

I too have had the surgery to remove my thyroid cancer . I had the radiation a few weeks ago . I am a very positive person and have had a bumpy few months . It is difficult at times remaining positive but I do think it is the only way I can navigate through this . 
I would recommend these support groups 100% they are your space to get the support from people who understand. 
good luck at your review 

Hi - I’ve been treated for tonsil cancer which came out of the blue. I was a bit of a stoic soldier in the treatment process and felt well supported, but as I now wait for results, like you I am feeling extremely emotional about everything. Hard to explain to people how it feels - always with me. They talk of adjusting to the new ‘normal’. But I don’t like the new normal. It hurts, it keeps me awake, it makes me sad and indifferent. I’m hoping sharing with folk going through similar feelings will help 

Hi, I have tonsil cancer as well and feeling extremely emotional, I had my tonsils out and the tumor removed. I had results of MRI yesterday which from what I understand there is nothing new so that’s a positive, I have a appt Monday to discuss treatment plan which from what I’ve read could be more surgery to clear the margins and or radiotherapy. My head is every where just want to know Excatly what to expect and what the best course of action is. 

Hi Toffee  come over and join us in the Head and Neck Cancer Group . We are a very friendly bunch who can deal with all your questions 

Toffee said:

want to know Excatly what to expect and what the best course of action is. 

Meanwhile have a look at this thread on Helpful Tips

Hi - this will be a long weekend of waiting for you. Can you take someone with you on Monday and make sure you prepare the questions you want exact answers to.

i gave my 4 month feedback meeting on Tuesday and like you are very anxious . I’ve had MRI and PET scans so they have all the information they need to make decisions.

I’m expecting either.

- all clear but come back in 4 months for further check up

- a little bit of tonsil cancer left so some robotic surgery needed asap to tidy up. Then back in 4 months for further check up

- cancer had spread whilst waiting for treatment so either specific surgery followed by further chemo or other followed by 4 month check up.

it seems whatever the outcome , I am not free of it so whilst there is a physical and medical side to this, the bigger battle is the mental side of things . That’s the challenge  for us all.

good luck on Monday. Will be thinking of you 

Thank you that’s kind of you, hope all goes well for you and yes it’s the mental challenges trying to keep positive but your mind races away with you. I just want to know where I am and what we need to do. The brain is over thinking and the eyes look inside the mouth and think it’s still there or is it scar tissues. We will see Monday . My husband is coming with me so aim lucky to have his love and support 

Good afternoon I think I’ve joined it now  thank you