Previously had kidney/adrenal gland cancer and been fine for about 5 years - I have only ever been under the care of a Urologist - but (even though I was expecting to get something akin to an all clear) he recently diagnosed me with more adrenal gland cancer and also 2 enlarged lymph nodes in my chest and is handing me over to Oncology. I have just received details of an initial meeting with an Oncologist on 17th Feb.
Feeling very anxious.
I am in the fortunate position to be able to go and stay with a friend of mine in Florida twice a year, once in the Autumn and again in the Spring, mainly to get away from our winter. Due now to travel on 1st March for 3 weeks. Dare I even contemplate this travel?
I just don't know what the future holds. I don't/won't stand in the way of any tests or investigations or treatment that may be required.
Hi SandLake and a very warm welcome to the Macmillan Community but sorry to hear about your ongoing challenges.
I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
…….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
This recurrence may well have an effect on any Travel Insurance you have in place so you may find this link to our....
……… where it will take you to ongoing discussion thread in our Travel insurance group as it's where the majority of recommendations from other forum members are.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial/work guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
