Hi,
I have Myelofibrosis, I'm post treatment(1year).If there is anyone on here that is awaiting admission to hospital, I'd be more than happy to share my experience and give a few tips that,A,the doctors and staff don't tell you, and B, will always any concerns.
Hi Landys3 and a very warm welcome to the Macmillan Community
I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
MDS/MPN/ET/PV/myelofibrosis (MF)
…….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
