Hi I’m new here although I’m not new to cancer, so to speak. I was diagnosed with aggressive cancer in my left Kidney tube in August 24. This resulted in me having the kidney and tube removed and my bladder capped. I don’t think I handled it all too well, if I’m being honest, although I’m not sure how I was meant to handle it. I have just been informed that I have cancerous lump on my other kidney, that they intend to watch for the next few years and operate when it’s needed. Again I am not sure what I should be feeling as I don’t think I feel anything at all. Anyone have any idea why I’m like this? I remember a ex having breast cancer twice, the first time I could tell and see her determination and the second time nothing but hate and rage. Yet I don’t feel either of these.
Hi Chris1830 and a very warm welcome to the Macmillan Community but sorry to hear about your journey.
I know from experience having been on my cancer journey for over 25 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
…….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above……. then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial/work guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Hi Fleurette do join our dedicated……..
…….. support group as this will open up your support network to a wider group of people.
Hi Fleurette,
I understand exactly how you feel, I had cancer in the tube that joins the left kidney to the bladder, the cancer was close to the kidney so they had to remove it. They removed the kidney, the whole
tube and part of my bladder. I was considered unlucky that I had to go home with the catheter still in for two weeks, then have chemo in my bladder, which sounds worse than it was. You are given ver good pain relief after the operation, the recovery time was for me about 5-6 weeks. I could walk about and get up stairs after four days on my own. The pain wasn’t bad at all if you take the pain rlief at the right time. Yes it’s a major op, but you will be surprised how quick you feel well. The tech now days probably helps eliminate extra weeks of pain, it was far better than I thought, you an do this ️️
Hi
I was in hospital for 2 nights, I was told 3 nights but I was up walking early, so came out early. As you have had an operation before I wouldn’t worry about dying or things going wrong, surgeons relly know what they’re doing now days. I tried to keep myself busy and shut my mind off to the operation, leading up to it. Our NHS are wonderful, you really are safe in their hands. I have been toldthey will operate on my others kidney in a few years time when the cancerous cyst gets bigger. It’s hard but try not to worry about it, it’s what I’m trying to do. All the best ️️
